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June 2004- Biotech Firm To Develop Gene Therapy For Duchenne - Creatine Helps Boys With DMD - New Gene Found In Charcot-Marie-Tooth Disease - MDA Researcher Elected To National Academy of Sciences
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RESEARCH
NEWS
BIOTECH FIRM TO DEVELOP
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Kevin Campbell, a longtime MDA grantee at the University of Iowa in Iowa City, was elected in April to the National Academy of Sciences. The designation is one of the nation's highest honors for scientists.
Campbell's work has led to the identification of the molecular and genetic bases of several forms of muscular dystrophy, and provided a clearer understanding of the muscular dystrophy disease processes.
Campbell serves as a member of MDA's Scientific Advisory
Committee.
MDA NEWS
MDA AND IAFF CELEBRATE 50 YEARS
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It's been five decades since MDA teamed up with the International
Association of Fire Fighters, and the
partnership continues to
thrive.
The IAFF is MDA's largest sponsor, having contributed more than $200 million to the fight against neuromuscular diseases, including $18.3 million last year alone.
The IAFF and MDA are celebrating the golden
anniversary in many ways this year, including a special tribute
to fire fighters planned for the 2004 Jerry Lewis MDA Telethon on
Labor Day weekend.
Read about the rich history
of this friendship, and some of the many ways that fire fighters
across the country
make a difference to the people served by MDA.
SUMMERTIME MEANS, OF COURSE, MDA SUMMER
CAMP!
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Thousands of youngsters nationwide eagerly await the arrival of summer so they can spend an incomparable week at an MDA summer camp.
It's been called "the best week of the year" and "better than
Christmas" by kids with neuromuscular diseases. Each year some 4,000
youngsters enjoy a wide range of activities especially designed for
people who have limited mobility or use wheelchairs. Swimming,
boating, baseball, football and horseback riding, arts and crafts
and talent shows are just part of the camp routine.
MATTIE IS IN OUR HEARTS
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Mattie Stepanek, MDA's national goodwill ambassador for three years, has been through a severe ordeal that's kept him in intensive care in a Washington hospital since early March.
Recent updates on his condition are promising, but we continue to
send our prayers and best wishes to 13-year-old Mattie and his mom,
Jeni, and the outstanding team of medical professionals overseeing
his care.
MDA'S ALS PUBLICATION GETS BRIGHT NEW LOOK & NEW NAME
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MDA clients with amyotrophic lateral sclerosis are used to receiving valuable information and news in The MDA/ALS Newsletter.
The monthly publication has undergone a makeover, adding color and a more appealing layout, and with it a new name: the MDA/ALS Newsmagazine.
You can read the Newsmagazine's coverage of vital ALS information
online. If you have ALS, you should be receiving the Newsmagazine at
home; if you aren't, please notify your local MDA office.
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